Duara, Raginie
Pavlopoulou, Georgia
Hugh-Jones, Siobhan
Shaughnessy, Nicola
Herbert, Ruth
Baker, Sylvan
Williams, Emma
Sonuga-Barke, Edmund
Bhui, Kamaldeep
Mankee-Williams, Anna
Cooke, Paul
Funding for this research was provided by:
Medical Research Council (MR/X003116/1)
Arts and Humanities Research Council
Article History
Received: 23 January 2025
Accepted: 20 August 2025
First Online: 29 September 2025
Competing interests
: The authors declare no competing interests.
: Ethical approval was obtained from the Arts, Humanities and Cultures Ethics Committee at University of Leeds (ethics no. FAHC 22-057, date of approval: 24th March 2023). All research was performed in line with the principles of the Declaration of Helsinki.
: Informed consent for publication of anonymised data was provided by the participant(s) or a legally authorized representative.
: Written consent was taken from all participants by the project manager and where participants are 16 years or below, written consent was obtained from their legal representative. Informed consent was obtained from the YPAG members in April 2023 for their involvement throughout the project, informed consent for the focus group was taken in May 2023 and that from participants in the regional workshop was taken in July 2023.