Burdeus-Olavarrieta, Mónica http://orcid.org/0000-0003-4252-0373
San José-Cáceres, Antonia
García-Alcón, Alicia
González-Peñas, Javier
Hernández-Jusdado, Patricia
Parellada-Redondo, Mara
Funding for this research was provided by:
Asociación Síndrome Phelan-McDermid España
Instituto de Salud Carlos III (FI18/00233, FIS PI17/00819)
European Regional Development Fund
CIBERSAM, Madrid Regional Government (B2017/BMD-3740 AGES-CM-2)
European Union Structural Funds
European Union Seventh Framework Program
European Union H2020 Program under the Innovative Medicines Initiative 2 Joint Undertaking (115916, Project PRISM, 777394, Project AIMS-2-TRIALS)
Fundación Familia Alonso
Fundación Alicia Koplowitz
Fundación Mutua Madrileña
Article History
Received: 23 June 2020
Accepted: 28 May 2021
First Online: 10 July 2021
Declarations
:
: Caregivers gave informed consent in all cases (all adult participants were legally incapacitated). The ethics committee of the Hospital General Universitario Gregorio Marañón approved the study.
: Not applicable.
: AGA, JGP and PHJ declare that they have no competing interests. MBO received salary for the study coordination and data collection from Asociación Síndrome Phelan-McDermid España. ASJC has been a consultant for F. Hoffmann-La Roche Ltd, consults for Servier and is involved in clinical trials conducted by Servier. The present work is unrelated to the above grants and relationships. MPR has been a consultant for Fundación Alicia Koplowitz, the EMA and Instituto de Salud Carlos III (ISCIII); consults for Servier and Exeltis; has received grant/research support from CIBERSAM, Fundación Alicia Koplowitz, Fundación Mutua Madrileña, ISCIII and Horizon2020; receives travel support from Exeltis; and is involved in clinical trials conducted by Servier, F. Hoffmann-La Roche Ltd and Horizon2020. The present work is unrelated to the above grants and relationships.