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Authors
Downs, Jenny https://orcid.org/0000-0001-7358-9037
Wong, Kingsley https://orcid.org/0000-0001-5178-6080
Leonard, Helen https://orcid.org/0000-0001-6405-5834
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Funding
Funding for this research was provided by:
ACADIA Pharmaceuticals (N/A)
Stan Perron Charitable Foundation (N/A)
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Article History
Received: 17 January 2024
Accepted: 8 October 2024
First Online: 25 October 2024
Declarations
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: The Child and Adolescent Health Services Human Research Ethics Committee approved the AussieRett study (RGS2390) and the University of Western Australia Human Research Ethics Committee approved the InterRett study (2021/ET000616). Primary caregivers provided informed written consent to participate.
: Not applicable.
: JD: Consultancy for Marinus, Ultragenyx, Acadia, Avexis, Orion, Neurogene and Taysha; Clinical Trials with Anavex and Newron; All remuneration has been made to her department. HL: Consultancy for Marinus, Acadia, Avexis and Orion; Clinical Trials with Anavex and Newron; All remuneration has been made to her department. KW: Has no competing interests.
