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Authors
Dykens, Elisabeth M.
Roof, Elizabeth
Hunt-Hawkins, Hailee
Strong, Theresa V.
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Article History
Received: 12 June 2024
Accepted: 18 December 2024
First Online: 8 February 2025
Declarations
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: Ethical Approval for this study was obtained by the Vanderbilt University Institutional Review Board, Integrated Science Committee, under the auspices of the University’s Human Research Protections Program. Vanderbilt participants provided written, informed consent using the e-consent function of RedCap, a secure, web-based data collection platform. After consenting, parents were invited to complete 3 questionnaires on RedCap.Additional study approval was obtained for participants recruited from the Foundation for Prader-Willi Research (FPWR) Patient Registry. Prior to collecting data from the Registry, the study was reviewed and approved by FPWR’s research committee and IRB. All registrants in FPWR’s Patient Registry gave approval for their de-identified data to be used for research purposes.
: Not Applicable.
: The authors declare no competing interests.
