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Authors
Proctor, Alyesha
Lyttle, Mark D.
Voss, Sarah
Benger, Jonathan
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Funding
Funding for this research was provided by:
HEE/NIHR Integrated Clinical and Practitioner (ICA) Programme’s Doctoral Clinical and Practitioner Academic Fellowship (DCAF) Scheme (25215)
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Article History
Received: 24 July 2025
Accepted: 16 September 2025
First Online: 9 October 2025
Declarations
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: Ethics approval was obtained from the University of the West of England Faculty Research Ethics Committee. All procedures were performed in compliance with relevant laws and institutional guidelines with appropriate approval from the University of the West of England research ethics committee (HAS.23.02.069).
: N/A.
: Every participant has provided their informed consent to participate.
: Patients and public have been involved throughout this research. Both a Young Persons Advisory Group (children aged 9 to 17 years from Bristol and surrounding area) and Parent Advisory Group (parents and grandparents from the Southwest of England) have supported this study and confirmed its importance to children, parents, and the wider health and care system. Five members of the PAG were involved in doing the Delphi from a parent/patient point of view.
: This manuscript is an honest, accurate and transparent account of the study being reported. No important aspects of the study have been omitted and any discrepancies from the study as originally planned have been explained.
: The authors declare no competing interests.
