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Strategies for eliciting and synthesizing evidence for guidelines in rare diseases

Crossref DOI link: https://doi.org/10.1186/s12874-019-0713-0

Published Online: 2019-03-28

Published Print: 2019-12

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Pai, Menaka https://orcid.org/0000-0002-6053-689X
Yeung, Cindy H. T.

Akl, Elie A.

Darzi, Andrea

Hillis, Christopher

Legault, Kimberly

Meerpohl, Joerg J.

Santesso, Nancy

Taruscio, Domenica

Verhovsek, Madeleine

Schünemann, Holger J.

Iorio, Alfonso
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Article History

Received: 4 January 2018

Accepted: 19 March 2019

First Online: 28 March 2019

Authors’ information

: Not applicable.

: The qualitative study conducted as part of the NHF-McMaster hemophilia guideline was submitted to and approved by the Hamilton Integrated Research Ethics Board in Hamilton, Ontario, Canada. Written informed consent was obtained from all participants in the qualitative study. Ethics approval for the remainder of the described work (surveys of guideline panel members, whose ethical treatment and consent to participate in guideline related activities was considered implicit, as well as systematic reviews of anonymized and published data) was not sought, as it was determined not to require ethics submission and approval as per the Hamilton Integrated Research Ethics Board in Hamilton, Ontario, Canada.

: Not applicable.

: The authors declare that they have no competing interests.

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