Nordfalk, J. M. https://orcid.org/0000-0002-2277-3210
Gulbrandsen, P.
Gerwing, J.
Nylenna, M.
Menichetti, J.
Funding for this research was provided by:
EkstraStiftelsen Helse og Rehabilitering (7408)
Article History
Received: 30 October 2018
Accepted: 26 June 2019
First Online: 4 July 2019
Ethics approval and consent to participate
: The project received ethics approval from the Data Protection Official for Research at Akershus University Hospital. Sensitive data were protected by maintaining the Akershus University Hospital code of conduct in respect of storing data only within specified permitted access drives and using encrypted hardware. Raw data (videotapes) were only available to JN, JG, JM, and PG by administrative permission granted by the CEO of Akershus University Hospital.All participants were provided with information about the study prior to giving their written consent. Considering that the project involved informing patients about medications and risks related to a later stage of their disease, we involved an ethicist and a patient representative to discuss how to handle the possibility of this causing worry or emotional reactions. As a result, we ensured that medical advice or psychological support was provided in case of need.
: All patients and physicians have given written consent to publication of anonymized content.
: The authors declare that they have no competing interests.