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Article History

Received: 3 April 2018

Accepted: 15 November 2018

First Online: 4 December 2018

Ethics approval and consent to participate

: The study was performed in accordance with the Declaration of Helsinki and was approved by appropriate ethics committees. The work with national experts was approved by Newcastle University Faculty of Medical Sciences Ethics Committee (reference 00665/2013). The work with service managers, frontline staff, people with dementia and family carers by the UK Health Research Authority NRES Committee North East Newcastle & North Tyneside 1 (13/NE/0335).Written informed consent was obtained from all participants with capacity to consent for themselves prior to data collection. A checklist developed in a previous study was used to assess capacity to consent. In explaining the study to people with dementia, we stressed the voluntary nature of participation and the ability to withdraw if they did not wish to continue after the interview or observation had started. For participants lacking mental capacity to give informed consent, we followed the provisions of the Mental Capacity Act (2005) and identified a personal or nominated consultee (with the assistance of the person with dementia and/or service managers). This person was sent a participant information sheet and completed a consultee declaration form if they thought that taking part in the study would not have been contrary to the wishes of the person with dementia.

: Not applicable.

: The authors declare that they have no competing interests.

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