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Article History

Received: 14 January 2019

Accepted: 25 February 2019

First Online: 4 March 2019

Ethics approval and consent to participate

: Approval was received from the Sir Charles Gairdner Group Human Research Ethics Committee (HREC) (2014–133), the Department of Health of Western Australia HREC (2014/78), and from the Curtin University HREC (HR14/2015). Caregivers were required to provide written consent to participate. Patients provided written consent to study participation if their health and cognitive capacity allowed them to do so. When illness, cognitive impairment, or intellectual disability meant that the patient was unable to consider consenting to study participation, patient data (already collected routinely by the Department of Health) were included in this study under a waiver granted by the Human Research Ethics Committee of the Department of Health in accordance with the National Statement on Ethical Conduct in Research [CitationRef removed]. An ‘opt out form’ was provided for these patients in case there was a later opportunity – if and when their health improved – for them to consider inclusion of their data in the study, up until the time when the data were provided to the research team.

: Not applicable

: The authors declare that they have no competing interests.

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