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Article History

Received: 20 February 2019

Accepted: 29 May 2019

First Online: 24 June 2019

Ethics approval and consent to participate

: Participating in this study was voluntary and prior to the interview informed consent was signed by the person with dementia and the informal caregiver (a spouse, adult child, friend or a neighbour). Each participating country obtained ethical approval (approval number, where appropriate, given in parentheses): the Ethics Review Committee on Human Research of the University of Tartu (196/T-3) and the Ethical Committee of the Hospital District of South-West Finland (8/2010), Finland; the Comité de Protection des Personnes Sud-Ouest et Outre-Mer, Toulouse, France (09 202 07); the Nursing Science Ethical Committee at the University of Witten/Herdecke, Germany; the Medical Ethical Committee of the Academic Hospital Maastricht/Maastricht University, the Netherlands (MEC 10–5-044); the Ethical Committee of the Hospital Clinic in Barcelona, Spain (2010/6031); the Regional Ethical Review Board in Lund, Sweden (2010/538); and the National Research Ethics Service, North West 5 Research Ethics Committee, the United Kingdom (11/NW/0003) (Verbeek et al., 2012) []. For the RTPC project, the International Epidemiological Association (IEA)’s guidelines for good practice in epidemiological research (IEA, 2007) [], and the rules of the Declaration of Helsinki [], were followed.

: Not applicable.

: The authors declare that they have no competing interests.