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Article History

Received: 1 September 2020

Accepted: 17 June 2021

First Online: 30 June 2021

Declarations

:

: This study uses secondary data from a qualitative study. Ethics approval for this study was obtained from the St. Mary’s Hospital Research Ethics Committee, SMRC-REC #11–22. Written consent was obtained from all study participants by this study team to conduct qualitative interviews about their experiences of caregiving, and for future use of this data, including secondary analysis. No administrative permissions were required to access and use the dataset for secondary analysis as this approval and consent is embedded in the patient consent to secondary use of the data, as approved in the original ethics review and approval.

: Written consent for publication was obtained from all participants in this study as described above and in the text of the manuscript. In the original study, we use a two-step consent process – participants provided consent to the original interview and then provided a second consent (after review of their transcript) to permit use of the interview materials, as approved by participants, for future research (including secondary analysis), in publications, our online materials with video/audio excerpts at ExternalRef removed, and for teaching. In the original study, participants were sent the original transcript for their review with a request to remove any material they do not wish the research team to use prior to giving the secondary consent. They are given the option of using an alias or their real name in this work. This is the standard approach adopted for the international network of research teams that our Canadian team is a member of, known as DIPEx International: see ExternalRef removed.

: The authors declare that they have no competing interests.