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Authors
Persson, Ann-Christine
Dahlberg, Lena
Janeslätt, Gunnel
Möller, Marika
Löfgren, Monika
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Funding
Funding for this research was provided by:
Karolinska Institute
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Article History
Received: 24 January 2023
Accepted: 10 May 2023
First Online: 3 July 2023
Declarations
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: The authors declare no competing interests.
: This study was conducted in accordance with the ethical standards of the Declaration of Helsinki, and was approved by the Regional Ethical Review Board in Uppsala (reg. no. 2018/059). Supplementary applications for the revised interview guide (reg. no. 2019–04531) and for the inclusion of persons with dementia (reg. no 2020–02877) were approved by The Swedish Ethical Review Agency. Participants received oral and written information about the study, including information that participation was voluntary, and that data would be reported at group level. All participants gave written informed consent to participate in the study. At the time for the present study, the persons with dementia that participated in the interviews were considered capable of making an informed consent decision about their participation. This stand was taken in consultation with the occupational therapists at the memory clinics and significant others. The interviews were adapted to the conditions and needs of the persons with dementia as far as possible. Time of the day and length of interviews, and the way in which the interviews were conducted (with or without significant others, face-to-face, via telephone or via video calls) were flexible and based on the preferences of the individuals. Research has shown that it is valuable to allow persons with dementia to be heard and included in research [CitationRef removed, CitationRef removed]. Interviews can also be experienced as positive both by the persons with dementia and their significant others, providing a possibility to discuss and confirm feelings and experiences with another person [CitationRef removed]. However, attention to impairments and problems might lead to a negative impact on the person with dementia’s sense of self [CitationRef removed, CitationRef removed]. Thus, the participants had the opportunity to get in contact with the occupational therapists recruiting for the main project for solution-focused interventions if needed.
: Not applicable.
