Leinen, Andrea
Bühler, Felix
Köpke, Sascha
Löbberding, Mareike
Meyer, Gabriele
Schneider-Schelte, Helga
Wilm, Stefan
Bieber, Anja
Dichter, Martin N.
Funding for this research was provided by:
Universitätsklinikum Köln
Article History
Received: 22 February 2024
Accepted: 19 December 2024
First Online: 18 January 2025
Declarations
:
: The study is carried out according to the current data protection regulations (European General Data Protection Regulation and the German Federal Data Protection Regulation). The Ethics Committee of the German Society for Nursing Science has provided ethical approval for the project’s process evaluation (No. 22–035). In the event of protocol amendments, serious or unexpected adverse events or premature termination of the study, we will inform the Ethics Committee immediately. The participants, including the Linking Pins, staff, members of the management of the care facilities, people living with dementia and their legal representatives, will be informed about the study both verbally and in writing. Written informed consent will be obtained. Information about the procedures will be provided before the data collection begins. The participants are informed that the data obtained in the study will be published in scientific publications. In accordance with the consent, the researchers also reserve the right to reuse the collected data in further research work, such as secondary data analyses. Participants have the option to withdraw their consent at any point during the study. Given the variability in the ability of people living with dementia to remember, express themselves verbally, and relate to their diagnosis, the decision to conduct an interview will be made collaboratively in each case through joint discussions between the responsible nursing home staff and the project team during each data collection session. In cases where verbal or physical signs before or during data collection indicate discomfort or declining interest in the interview, ongoing and current consent [] is obtained to verify the persistence of the initial consent []. If, by mutual agreement or if the initial consent is no longer affirmed, the interview will not commence or, if already started, will be promptly terminated.
: Not applicable.
: The authors declare no competing interests.