Yahia, Ashraf
Elsayed, Liena http://orcid.org/0000-0001-5753-6760
Babai, Arwa
Salih, Mustafa A.
El-Sadig, Sarah Misbah
Amin, Mutaz
Koko, Mahmoud
Abubakr, Rayan
Idris, Razaz
Taha, Shaimaa Omer M.A.
Elmalik, Salah A.
Brice, Alexis
Ahmed, Ammar Eltahir
Stevanin, Giovanni
Funding for this research was provided by:
Agence Nationale de la Recherche
Horizon 2020 Framework Programme
E-rare progremme
deanship of Scientific Research, King Saud University (RGP-VPP-301)
Campus France
Article History
Received: 17 May 2018
Accepted: 17 October 2018
First Online: 23 October 2018
Ethics approval and consent to participate
: The study was approved by the Ethics committee of Paris-Necker Hospital (France) and the Ethics Committee of the University of Khartoum Medical Campus (Sudan). All participants agreed to participate in the study. Written informed consent was obtained from each patient and healthy family member before participation in the study. For participants under the age of 18, written informed consents were obtained from their father.
: Signed informed consents were obtained from participants for publication of personal and medical details included in the case report. For participants under the age of 18, signed consent for publication was obtained from their father.
: The authors declare that they have no competing interests.
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