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Article History

Received: 25 May 2020

Accepted: 2 June 2021

First Online: 30 June 2021

Declarations

:

: In each country, procedures have been performed in accordance with the ethical standards of the institutional and/or national research committees.France:CP population: The data were collected and stored in accordance with the reference methodology MR003 [Declaration No. 2205849 at the Commission for Data Protection and Liberties (CNIL)] each patient having been informed individually of the research under Article L1122–1 of the Public Health Code.General Population: Joint authorization from Ethikkommission Universität Greifswald [BB059/18].Germany:CP population: Ethikkommission der Universität zu Lübeck [AZ 18–172].General Population: Joint authorization from Ethikkommission Universität Greifswald [BB059/18].Italy General and CP Population: Comitato Etico Lazio 1c/o A.O. San Camillo Forlanini, Piazza Carlo Forlanini1, 00151 Roma [2143/CE Lazio 1].Portugal General and CP Population: Conselho de Ética e Deontologia, Universidade de Aveiro [CED-UA n.o 33/2018].Sweden General and CP Population: Regional Ethical Review Board in Göteborg, Sweden.In Germany, Sweden, Italy, Portugal, all young people with CP or their legal representatives will give written informed consent to participate. In France, according to the French regulation about research that does not lead to changes in the medical care of patients and does not contain risks for patients, a non-opposition to participate is only required. However, in the context of the SPARCLE3 study, written consent will be obtained as often as possible.Participants from the general population will be informed at the beginning of the online survey and will give their informed consent on line before being allowed to start the survey.

: Not applicable.

: The authors declare that they have no competing interests.