Bangel, Katrin A.
Lim, Albert Z.
Blain, Alasdair
Ng, Yi Shiau
Winder, Amy
Bulmer, Joseph
Gorman, Grainne
Baker, Mark
McFarland, Robert
Funding for this research was provided by:
Lily Foundation
Wellcome Trust ((203105/Z/16/Z), (203105/Z/16/Z), (203105/Z/16/Z), (203105/Z/16/Z), (203105/Z/16/Z), (203105/Z/16/Z))
Article History
Received: 28 June 2024
Accepted: 7 October 2024
First Online: 22 October 2024
Declarations
:
: Ethical approval from the Research Ethics Committee (REC; 21/YH/0137), and local NHS site R&D approval (Newcastle Joint Research Office) have been obtained. Informed consent will be obtained from participants or their parents/carers. In addition, if participants are under the age of 16 verbal assent will be obtained. Model consent forms address the following aspects: Participation Agreement, Understanding of Information, Voluntary Participation, Access to Medical Records, Clinical Information Retrieval, Data Retention upon Withdrawal, Data Security, Future Research Use, GP Notification, Optional Video Recordings, and Optional Seizure Tracking.
: This document does not contain any identifying images, or other personal or clinical details of participants presented.
: The authors declare no competing interests.