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Article History

Received: 18 March 2024

Accepted: 30 July 2024

First Online: 6 August 2024

Declarations

:

: The need for ethics was deemed unnecessary as patients were recruited via the patient organization, SPAGN, and not via medical doctors or researchers. Informed consent was obtained from all participants. Within the questionnaire, participants were informed about the nature of the study and data usage (i.e. anonymous publication). This approach complies with the General Data Protection Regulation (GDPR) (Regulation (EU) 2016/679), which allows for the collection of personal data with appropriate consent and data protection measures. Furthermore, the ethical guidelines set forth in the Declaration of Helsinki were followed, ensuring that participants’ rights and well-being were prioritized.

: All patients consented to anonymously publishing their responses to the questions.

: NS provided consultation or attended advisory boards for Boehringer Ingelheim, Ellipses Pharma, GlaxoSmithKline, Incyte, Luszana. NS received research grants from Abbvie, Actuate Therapeutics, Amgen, Array, Ascendis Pharma, AstraZeneca, Bayer, Blueprint Medicines, Boehringer Ingelheim, Bristol-Myers Squibb, Cantargia, CellCentric, Cogent Biosciences, Cresecendo Biologics, Cytovation, Deciphera, Dragonfly, Eli Lilly, Exelixis, Genentech, GlaxoSmithKline, IDRx, Immunocore, Incyte, InteRNA, Janssen, Kinnate Biopharma, Kling Biotherapeutics, Lixte, Luszana, Merck, Merck Sharp & Dohme, Merus, Molecular Partners, Navire Pharma, Novartis, Numab Therapeutics, Pfizer, Relay Pharmaceuticals, Revolution Medicin, Roche, Sanofi, Seattle Genetics, Taiho, Takeda. All outside the submitted work, all payment to the Netherlands Cancer Institute. All remaining authors have declared no conflicts of interest.