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Authors
Khetani, M. A. https://orcid.org/0000-0003-2628-3371
McManus, B. M.
Albrecht, E. C.
Kaelin, V. C.
Dooling-Litfin, J. K.
Scully, E. A.
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Funding
Funding for this research was provided by:
Eunice Kennedy Shriver National Institute of Child Health and Human Development (1R03HD084909-01A1)
Eunice Kennedy Shriver National Institute of Child Health and Human Development (1R03HD084909-01A1)
Eunice Kennedy Shriver National Institute of Child Health and Human Development (K12 HD05593)
National Institutes of Health (P2CHD065702)
Division of Loan Repayment (L40HD085277)
National Center for Advancing Translational Sciences (UL1TR002003)
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Article History
Received: 5 August 2019
Accepted: 29 May 2020
First Online: 3 July 2020
Ethics approval and consent to participate
: Multi-institutional ethics approval (University of Illinois at Chicago Institutional Review Board (protocol number: 2016–0139), University of Colorado Institutional Review Board) was obtained prior to recruitment and data collection (March 2017–August 2018).
: Eligible and interested caregivers visited the project website to create an account, confirmed study eligibility, provided informed consent and HIPAA authorization for abstracting select EI service use data.
: The YC-PEM e-PRO is a measure that was used in this study. YC-PEM e-PRO is licensed for distribution through CanChild Centre for Childhood Disability Research. A portion of sales from YC-PEM sales is allocated to M. Khetani for sponsored activity.
