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Article History

Received: 28 August 2024

Accepted: 2 December 2024

First Online: 27 December 2024

Declarations

:

: The study will be conducted in accordance with the Helsinki Declaration [], and study approvals have been obtained from the relevant authorities (the Regional Ethics Committees, project number H-22072918, and the regional data protection agency). Participants and their parents will be informed about the study (oral and written) and consent will be signed before participation. Participants will be free to withdraw from the study at any time without giving any explanation. All participating families will be offered feedback based on the cognitive assessment. The feedback will consist of a written summary of the child’s performance as well as recommendations for intervention if relevant. In case of clinically significant findings (test scores > 2 SD from the norm average), parents will be informed orally within four weeks of completed testing and will receive an extensive written summary which can be distributed to the child’s network to facilitate relevant intervention or referral. If needed, the neuropsychologist responsible for the assessment will offer live or virtual meetings including the family and relevant professionals, such as schoolteachers or school psychologists (e.g., if the parents or school professionals prefer a meeting or have questions about the results or recommendations). In cases where the mental health questionnaires reveal symptoms of psychiatric disorders that require acute or sub-acute intervention (specifically: severe depression or anxiety, psychotic episodes or thoughts related to death or suicide), the symptoms will be evaluated to determine if the family needs urgent care. In acute cases, the neuropsychologist will assist the family in identifying the nearest acute psychiatric admission center and urge the family to go immediately. In subacute cases, the family will be guided in the steps to seek help via the family’s GP or services in their municipality.

: Not applicable for this protocol paper.

: The study will be carried out in collaboration between neuropsychologists and neuropediatricians affiliated with the primary sites of assessment, as well as national and international CP experts. The study team comprises: MSc, PhD, Camilla Funch Uhre, Center for Clinical Neuropsychology, Children and Adolescents, Rigshospitalet, Denmark (PI and sponsor). Assistant Professor Ro J. Robotham, Department of Psychology, University of Copenhagen, Denmark (member of steering committee). Professor, consultant pediatric neurologist, Dr.Med, Christina E. Høi-Hansen, Department of Children and Adolescents, Rigshospitalet and University of Copenhagen, Denmark (member of steering committee). MSc, PhD, Ida Dyhr Caspersen, Center for Clinical Neuropsychology, Children and Adolescents, Rigshospitalet, Denmark (Postdoc, primary assessor at Rigshospitalet). Associate Professor, PhD, consultant pediatric neurologist Gija Rackauskaite, Aarhus University Hospital, Denmark (primary responsible for recruitment at Aarhus University Hospital). MSc Carsten Lose, Head of Department for Children and Adolescents, Center for Rehabilitation of Brain Injury, Denmark (Senior neuropsychologist, member of steering committee, supervisor and responsible for assessments at the Center for Rehabilitation of Brain Injury). MSc Frank Humle, Director of the Center for Rehabilitation of Brain Injury, Denmark. MSc Louise Maria Torp Sørensen, Aalborg University Hospital, Aalborg, Denmark. Associate Professor, PhD, Jonas Kjeldbjerg Hansen, Aalborg University Hospital, Aalborg, Denmark. The study team develops and coordinates the study, including recruitment of participants, data collection, and dissemination of results. In addition to the study team, the project is overseen by an advisory board including: Associate Professor, Kristine Stadskleiv, Department of Special Needs Education, University of Oslo, Norway. Associate Professor Ann Alriksson-Schmidt, Department of Clinical Sciences, Lund University, Sweden.

: The authors declare no competing interests.