Document is current
Any future updates will be listed below
-
Authors
Ingvorsen, Emilie B.
Schnohr, Christina https://orcid.org/0000-0002-3068-9879
Andersen, Terkel
Lehrmann, Lars
Funding, Eva
Poulsen, Lone H.
Holm, Karen B.
Laursen, Alex L.
Gerstoft, Jan
Bjorner, Jakob B.
-
Funding
Funding for this research was provided by:
Gilead Sciences (220001367)
- License Information
-
More Information
Article History
Received: 13 June 2019
Accepted: 11 December 2019
First Online: 19 December 2019
Ethics approval and consent to participate
: The 1988 study was approved by the Danish Institutional Review Board. Subsequently, Danish Law specified that questionnaire studies did not require ethical approval [], so the 2001 and 2012 surveys did not require and could not obtain renewed approval. The questionnaires were accompanied by information regarding the participation being voluntary and having no impact on treatment. For children, parents filled out the questionnaire together with the participant or on behalf of the participant. Informed consent was given by returning a completed version of the questionnaire to the Danish Hemophilia Society, thus written consent was not applicable. For children, informed consent was provided by parents when participating. The Danish National Committee on Health Research Ethics approve consent in this form.
: Not applicable.
: TA received a speaker fee at Novo-Nordisk Workshop in 2017. The other authors stated that they had no interest which might be perceived as posing a conflict or bias.
