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Authors
Hill, Claire L.
Kingshott, Ruth N.
Bishop, Nick J.
Elphick, Heather E.
Murphy, Kieran
Rigby, Alan
Barker, Nicki
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Funding
Funding for this research was provided by:
Sheffield Children's Hospital Charity (CA15003, CA15003, CA15003, CA15003, CA15003, CA15003, CA15003)
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Article History
Received: 27 May 2025
Accepted: 10 September 2025
First Online: 10 October 2025
Declarations
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: This study was conducted in accordance with the Declaration of Helsinki and received approval from the National Research Ethics Committee (London – Queen Square Research Ethics Committee on 28th April 2017; Reference Number: 17/LO/0733). Parents provided written informed consent on behalf of their child (as legal representatives), and wherever possible informed written assent was also obtained from the child.
: Not applicable.
: Claire Hill developed the OIQoL questionnaire, a disease specific quality of life questionnaire for children with Osteogenesis Imperfecta. The University of Sheffield hold the IP rights to the questionnaire.
