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Authors
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Funding
Funding for this research was provided by:
National Institute for Health Research (CDF-2018-11-ST2-002)
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Article History
Received: 29 June 2020
Accepted: 11 January 2021
First Online: 22 January 2021
Ethics approval and consent to participate
: Ethics approval for this study was obtained from the University of York’s Department of Health Sciences Research Governance Committee (HSRGC/2019/352/C) and governance approval was obtained from the Health Research Authority (IRAS: 272774). All participants received a study information sheet and provided either verbal recorded or written consent prior to participation—the former was approved by the Research Governance Committee as previous studies have found participants don’t always return signed consent forms. Verbal consent was recorded with audio recording equipment at the beginning of interviews.
: Not applicable.
: All three authors work for the Martin House Research Centre, which receives some of its funding from Martin House children’s hospice. LF is part of the MCN’s Executive Committee but was not a participant in the study and did not take part in data collection or initial coding.
