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Article History

Received: 15 April 2025

Accepted: 30 June 2025

First Online: 12 July 2025

Declarations

:

: The study was approved by the Ethics Committee of the University of Aix-Marseille (N/Ref: 2023-02-09-011). All participants were anonymized in the report, and any potentially sensitive information was handled with the utmost care and confidentiality.All participants who volunteered to take part in a focus group were sent an information letter outlining the project's aim and the procedures for participation. These procedures included the recording of the focus group, the guarantee of anonymity during transcription, the procedures for analyzing and co-validating the verbatim transcripts, and so forth. These elements were reiterated at the start of each focus group in an introductory speech. Participants received prior written and oral information about the study. According to national regulations and the decision of the ethics committee, participation was based on non-opposition, and all participants were informed that they could refuse to take part in the study at any time.Informed consent was obtained from all participants through a process of prior information and non-opposition. Participants and their caregivers were informed about the objectives of the study, its voluntary nature, and the confidentiality of their data. The absence of opposition was considered as consent to participate, in accordance with national ethical standards.

: Participants were informed that anonymized quotes from the interviews might be used in publications, and none expressed opposition to this.

: The authors declare no competing interests.