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Authors
Kilpatrick, Kelley
Allard, Émilie
Jabbour, Mira
Tchouaket, Eric
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Funding
Funding for this research was provided by:
Ministère de la santé et des services sociaux du Québec (reference number 19-MS-09068)
McGill University Faculty of Medicine and Health Sciences and the Newton Foundation via the Susan E. French Chair in Nursing Research and Innovative Practice (N/A)
Fonds de recherche du Québec-Santé (award number 298573)
Canadian Research Chair Tier 2 in Economics of Infection Prevention and Control: ÉconoPCI (grant number CRC-2021-00321)
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Article History
Received: 14 March 2025
Accepted: 3 July 2025
First Online: 12 July 2025
Declarations
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: The scientific, ethical and institutional reviews were completed by the Research Ethics Committee of the Centre intégré universitaire de santé et de services sociaux (CIUSSS) de l’Est-de-l’Île-de-Montréal (Ref. # MP-12-2021-2129) and the CIUSSS du Nord-de-l’Île-de-Montréal (Ref. # MEO-12-2023-2612). The administrative database contained no identifiers for patients receiving PEoLC or their caregivers. Confidentiality was preserved throughout the study. An alpha-numeric code was assigned to interview participants. Findings are presented in aggregate form and by groups to avoid identification. All interview participants signed an information and consent form. They were free to withdraw from the study at any time, without consequences or reprisals. Regular check-ins were made during the interviews to ensure that patients receiving PEoLC and caregivers wished to continue. Data collection was flexible, adapting to the needs, schedules and limitations of participants. Interviews were shortened when necessary to ensure well-being and promote equitable participation for participants, especially as some participants were frailer due to illness or end-of-life.
: Not applicable.
: The authors declare no competing interests.
