Tiller, Jane https://orcid.org/0000-0003-3906-6632
McInerney-Leo, Aideen
Belcher, Andrea
Boughtwood, Tiffany
Gleeson, Penny
Delatycki, Martin
Barlow-Stewart, Kristine
Winship, Ingrid
Otlowski, Margaret
Keogh, Louise
Lacaze, Paul
Funding for this research was provided by:
Medical Research Futures Fund (76721)
National Heart Foundation (Future Leader Fellowship)
National Health and Medical Research Council (1158111)
Article History
Received: 11 February 2021
Accepted: 12 May 2021
First Online: 21 May 2021
Declarations
:
: Ethics approval for aspects of the project (Part 2: Health Professionals) has been received by the Monash University Human Ethics Research Committee, Project ID no 22576. Participants who have been recruited for this aspect have provided consent in writing. Approval for the balance of the project will be finalised, and informed consent to participate obtained from all research participants prior to data collection.
: Not applicable.
: Many of the authors of this manuscript (JT, AML, AB, PG, MD, KBS, IW, MO, LK, PL) are also members of the Australian Genetic Non-Discrimination Working Group (AGNDWG), a multi-disciplinary group of professionals encompassing fields of genetics, medicine, research, law, bioethics, social science and actuarial science, which was formed in 2016 to explore issues around the use of genetic information. The AGNDWG made submissions to and was called upon to provide evidence to the Parliamentary Inquiry into the Life Insurance industry in 2017.