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A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada

Published Online: 2021-06-09

Published Print: 2021-12

Authors

Rahimzadeh, Vasiliki http://orcid.org/0000-0003-3537-7601
Bartlett, Gillian

Knoppers, Bartha Maria
Funding

Funding for this research was provided by:

Canadian Institutes of Health Research (359258, Tier I Research Chair in Law and Medicine)
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Text and Data Mining valid from 2021-06-09

Version of Record valid from 2021-06-09
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Article History

Received: 28 July 2020

Accepted: 14 May 2021

First Online: 9 June 2021

Declarations

:

: This study #A04-E32-16B obtained expedited ethics approval from the McGill University Institutional Review Board. Participants indicated their consent by clicking “next” on an informational landing page prior to completing each survey round. The landing page described the aims of the study, the scope of their participation, benefits and risks of the study as well as confirmation of how their data would be kept confidential.

: Not applicable.

: Authors VR and BMK are members of the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health.

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