Rahimzadeh, Vasiliki
Baek, Jinyoung
Lawson, Jonathan
Dove, Edward S.
Funding for this research was provided by:
National Human Genome Research Institute (U24HGO10262, U24HGO10262, U24HGO10262, U24HGO10262)
Article History
Received: 9 January 2024
Accepted: 26 April 2024
First Online: 5 May 2024
Declarations
:
: This study was reviewed and approved the Stanford University Institutional Review Board. All participants were informed of the purpose of the study, funding, risks and benefits at the time of invitation. Informed consent was obtained from all participants prior to the interview and participants were provided opportunities to ask any questions about the study procedures.
: Not applicable.
: All authors are members of the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. JL is co-lead of the Data Use Ontology, leads the Data Use Oversight System and is a member of the Broad Institute Data Access Committee.