Schou-Juul, Frederik
Gordijn, Bert
Morais, Ana
Fonseca, Magda https://orcid.org/0000-0002-4432-7959
Scerri, Anthony
Hinrichsen, Carsten
Porteri, Corinna
Sperling, Daniel
Kelly, Dervla
Bobrowicz-Campos, Elzbieta
Dogru-Huzmeli, Esra
Jarašiūnaitė-Fedosejeva, Gabija
Thygesen, Hilde
Stončikaitė, Ieva
Alexandre, Isabel Machado
Rymaszewska, Joanna
Irving, Kate
Zajdó, Krisztina
Johansson, Linda
Ferm, Lucca-Mathilde Thorup
Riklikiene, Olga
McQuillan, Regina
Serrat, Rodrigo
Silva, Rosa
Schicktanz, Silke
Bielsten, Therése
Ulman, Yesim Isil
Lauridsen, Sigurd
Funding for this research was provided by:
University of Southern Denmark
Article History
Received: 3 April 2026
Accepted: 24 June 2026
First Online: 17 July 2026
Declarations
Ethics approval and consent to participate: The internal development of the framework through workshops, online meetings, and iterative drafting within COST Action CA21137 (Ethics in Dementia, EDEM) constituted a scholarly framework-development process among members of the Action and did not involve the collection of research data from participants outside that network. The external pilot validation phase, by contrast, involved the collection of sociodemographic data and expert feedback from external participants. Formal ethics approval for this phase was obtained from the Research Ethics Committee of the University of Évora, Portugal (24 October 2025). All participants in the pilot external validation phase received study information and provided informed consent before completing the questionnaire. Responses were pseudo-anonymised, handled confidentially, and analysed in accordance with the European General Data Protection Regulation and the principles of the Declaration of Helsinki.
Consent for publication: Not applicable.
Competing interests: The authors declare no competing interests.