Wildenbos, Gaby Anne http://orcid.org/0000-0003-4197-5691
Horenberg, Frank
Jaspers, Monique
Peute, Linda
Sent, Danielle
Article History
Received: 16 August 2018
Accepted: 13 November 2018
First Online: 21 November 2018
Ethics approval and consent to participate
: Ethics approval: Not Applicable, the local medical ethics committee (METC) ruled that no formal ethics approval was required for this study, compliant with Dutch national guidelines on ‘Medical Research Involving Human Subjects Act’ (WMO): ExternalRef removed Consent to participate: Patients that are a member of the patient panels of the Dutch Heart Council or the Lung Fund actively applied to be member of one of these panels. Patients digitally register to the patient panels and have to confirm their registration. By being a panel member they can take part in scientific research related to their medical condition. Participation to these scientific studies is thus intrinsically motivated and always on a voluntary basis. On the websites of the Dutch Heart Council and the Lung Fund patients are informed on what it entails to participate in their patient panel and what type of research activities are performed. The patient associations decide which scientific research is eligible to request the participation of their patient panels. Permission by both patient associations was given for this study to electronically distribute the questionnaire to their patient panels.
: Not Applicable.
: Frank Horenberg is affiliated with ZIVVER. The authors declare that they have no further competing interests.
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