Crossmark

Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice

Crossref DOI link: https://doi.org/10.1186/s12911-019-0911-z

Published Online: 2019-09-18

Published Print: 2019-12

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Babac, Ana https://orcid.org/0000-0002-0210-5370
von Friedrichs, Verena

Litzkendorf, Svenja

Zeidler, Jan

Damm, Kathrin

Graf von der Schulenburg, J.-Matthias
License Information

Text and Data Mining valid from 2019-09-18

Version of Record valid from 2019-09-18
More Information

Article History

Received: 24 July 2018

Accepted: 9 September 2019

First Online: 18 September 2019

Ethics approval and consent to participate

: The ethics committee at Albert-Ludwigs-University Freiburg (number 53/14) issued a positive committee vote for the interview study conducted as part of the establishment of a central information platform on rare diseases in Germany (Zentrales Informationsportal über seltene Erkrankungen). Informed consent was obtained in writing from all participants.

: Not applicable.

: The authors declare that they have no competing interests.

Document is current

Any future updates will be listed below