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Authors
Albrecht, E. C.
Kaelin, V. C.
Rigau, B. L.
Dooling-Litfin, J. K.
Scully, E. A.
Murphy, N. J.
McManus, B. M.
Khetani, M. A. https://orcid.org/0000-0003-2628-3371
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Bane, Jamie
Carle, Haley
Jatsko, Amy
Pedrow, Amanda
Sciarcon, Laura
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Funding
Funding for this research was provided by:
National Center for Medical Rehabilitation Research (1R03HD084909-01A1, P2CHD065702, K12 HD05593, 1R03HD084909-01A1)
Division of Loan Repayment (L40HD085277)
National Center for Advancing Translational Sciences (UL1TR002003)
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Article History
Received: 11 July 2019
Accepted: 16 July 2020
First Online: 24 August 2020
Ethics approval and consent to participate
: Multi-institutional ethics approval (University of Illinois at Chicago Institutional Review Board (protocol number: 2016–0139), University of Colorado Institutional Review Board) was obtained prior to recruitment and data collection (March 2017–August 2018). Eligible and interested caregivers visited the project website to create an account, confirmed study eligibility, provided informed consent and HIPAA authorization for abstracting select EI service use data.
: Not Applicable.
: The YC-PEM e-PRO was used in this study and is licensed for distribution through CanChild Centre for Childhood Disability Research. M. Khetani shares in revenue from YC-PEM sales for research and development activities in her lab.
