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Authors
Parmar, Gurkiran
Howard, A. Fuchsia
Noga, Heather
Tannock, Leah
Abdulai, Abdul-Fatawu
Allaire, Catherine
Lett, Sarah
Sutherland, Jessica
de Arbina, Edurne Lopez
Hummelshoj, Lone
Bridge-Cook, Phillipa
Yong, Paul J.
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Funding
Funding for this research was provided by:
Canadian Institutes of Health Research (156084)
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Article History
Received: 9 August 2022
Accepted: 30 January 2025
First Online: 13 February 2025
Declarations
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: There were five phases of the website development process. Informed participant consent for Phase 1 and Phase 3 of the project was waived by the University of British Columbia, Children’s and Women’s Research Ethics Board. The landscape analysis in Phase 2 did not require approval by an institutional research ethics board because we completed an analysis of online information that is publicly available. Approval for the usability testing in Phase 4 A was granted by the University of British Columbia, Children’s and Women’s Research Ethics Board (H19-03556). Approval for the qualitative interviews in Phase 4B was granted by the University of British Columbia, Children’s and Women’s Research Ethics Board (H19-03507). We obtained informed consent from all participants in Phase 4 A and Phase 4B. We did not require approval from a research ethics board to complete Phase 5 because we did not collect any data during the revisions and launch of the website. All methods in this research project were carried out in accordance with the guidelines and regulations in the Declaration of Helsinki.
: We did not need to obtain consent from the patient partners, clinicians, allied healthcare staff and researchers that are on our team because we did not collect any personal data. We obtained informed consent from all participants in Phase 4 A and Phase 4B. We have taken screenshots of our website to create Table , which includes stock images of people. We did not need informed consent from the people in those images since they are stock images and we own the website. The copyright information of the Pelvic Pain and Endometriosis website can be found here: Registration number: 1186614 - Canadian Copyright Database - Canadian Copyright Database - Canadian Intellectual Property Office - Intellectual property and copyright - Innovation, Science and Economic Development Canada.
: One of the authors (CA) has financial affiliations with Abbive. The other authors do not have any conflicts of interest.
