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Article History

Received: 30 May 2017

Accepted: 29 May 2018

First Online: 20 June 2018

Ethics approval and consent to participate

: Both the Connect (application # 2010/3396/REK sør-øst B) and TO-study (application # 2011/1913) were submitted to the Regional Ethics Committee (REC) for assessment. REC approved the former, while REC waived the need for approval for the TO-study. The Regional Data Protection Officer approved both studies. Informants were contacted by their regular health provider, such as the cancer nurse, their primary care nursing contact, their GP, or by a representative of their local patient organization on behalf of the study. Eligible patients were informed about the aim of the study and provided with written information and the informed consent form. The participant contact information was forwarded to the research team only when the informed consent form had been signed. For the under-age child, the child’s parents consented to participate in the study on the child’s behalf.

: The authors declare that they have no competing interests.

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