Document is current
Any future updates will be listed below
-
Authors
Clarke, Harrison https://orcid.org/0000-0001-7341-4018
Morris, Walter https://orcid.org/0000-0001-6965-3518
Catanzano, Matteo https://orcid.org/0000-0002-7876-4348
Bennett, Sophie https://orcid.org/0000-0002-1076-7112
Coughtrey, Anna E.
Heyman, Isobel https://orcid.org/0000-0001-7358-9766
Liang, Holan
Shafran, Roz https://orcid.org/0000-0003-2729-4961
Batura, Neha https://orcid.org/0000-0002-8175-8125
-
Funding
Funding for this research was provided by:
Beryl Alexander Charity and the Great Ormond Street Hospital Children’s Charity (W1132, W1132, W1132, W1132, W1132, W1132, W1132, W1132, W1132)
- License Information
-
More Information
Article History
Received: 21 August 2021
Accepted: 29 March 2022
First Online: 19 April 2022
Declarations
:
: Ethics approval was granted by the London Riverside Research Ethics Committee (REC reference number: 16/LO/1915). An informed consent was taken in writing from all participants (parents, siblings and index children aged 16 and above who had capacity to consent) included in the study by research assistants. In some instances, participants verbally consented over the phone, which was recorded and the responses were written up by the research assistants. In the case of children under the age of 16 years, assent was obtained from the relevant child (ie, sibling, index child or both) alongside parental consent.
: Not applicable.
: No conflict of interest to declare.
