Leiz, M.
Knorr, M.
Moon, K.
Tischler, L.
Sohrabi, K.
Cantez, S.
Däbritz, J.
de Laffolie, J.
van den Berg, N.
,
Buderus, S.
Bufler, P.
Dammann, S.
Hauer, A.
Keller, K.-M.
Krahl, A.
Laaß, M.
Lang, T.
Posovszky, C.
Rodeck, B.
Trenkel, S.
Funding for this research was provided by:
Universitätsmedizin Greifswald
Article History
Received: 27 July 2022
Accepted: 3 June 2023
First Online: 17 June 2023
Declarations
:
: Analyses on the basis of the registry CEDATA-GPGE and the supplementary survey were approved by the Ethics Committee of the Justus-Liebig University Giessen (ethic approval protocol number 07/11) and by all ethics committees of centers involved (see Additional file ). Participating centers from Austria have an additional local ethics vote. In order for patients to be included in the registry, their parents must give their written informed consent. Data assessment and analyses were performed in accordance with the guidelines and recommendations for Good Epidemiological Practice (30) and in accordance with the Declaration of Helsinki (31).
: Not applicable.
: The authors declare they have no competing interests.