Linderman, Michael D.
Adelson, Sophia M.
Berro, Tala M.
Anderson, Jennifer L.
Crawford, Scott D.
Cunningham, Tshaka J.
Esplin, Edward D.
Ewing-Crawford, Altovise T.
Nielsen, Daiva E.
Pereira, Stacey
Schmidlen, Tara
Andrighetti, Heather
Bleyl, Steven B.
Church, George M.
Haverfield, Eden V.
Hegde, Madhuri
Konstantinos, Lazaridis N.
Kruszka, Paul
Leonard, Debra
May, Thomas
McGinniss, Molly
Pandya, Vaibhav
Schadt, Eric E.
Greshake Tzovaras, Bastian
Zettler, Bethany
McGuire, Amy L.
Green, Robert C.
,
Juusola, Jane
McWalter, Kirsty
Bleyl, Steven
Esplin, Ed
Haverfield, Eden
Konstantinos, Lazaridis
Anderson, Jennifer
Hazell, Allison
Gu, Jessica
Hogan, Jennifer
Church, George
Ball, Madeleine
McGinnis, Molly
Schadt, Eric
Linderman, Michael
McGuire, Amy
Christensen, Kurt
Nielsen, Daiva E.
Caskey, Thomas
Zoltick, Emilie
Berro, Tala
Adelson, Sophia
Crawford, Scott
Young, Robert
Hunsanger, Jillian
Bradley, Sophia
Cunningham, Tshaka
Ewing-Crawford, Altovise
Roberts, Scott
Ricks-Santi, Luisel
Lillard, James Jr.
Washington, Kareem
Johnson, Anthony
Funding for this research was provided by:
National Human Genome Research Institute (R03-HG008809)
National Human Genome Research Institute (R01-HG009922)
Article History
Received: 29 January 2026
Accepted: 8 June 2026
First Online: 3 July 2026
Declarations
:
: The Partners Healthcare Human Research Committee approved this study along with Baylor College of Medicine Institutional Review Board and Harvard Medical School Institutional Review Board for PGP. Informed consent was obtained electronically from all participants. Individual data was de-identified by the survey administrator prior to analysis. This study conforms to the Declaration of Helsinki.
: Not applicable.
: S.C.D. is the owner of SoundRocket, the data collection firm involved in the collection of survey data for this study. T.J.C. is a shareholder of Polaris Genomics. E.D.E. is an employee and stockholder of Labcorp Genetics (formerly Invitae), is an advisor and stockholder of Taproot Health, Exir Bio, and ROMTech. T.S. is an employee and stockholder of Nest Genomics. G.M.C. advisory roles include Nebula Genomics, Orchid Health, and Glottatech.com. E.V.H. is an employee and shareholder of Genomic Life. M.H. is an employee and shareholder of Revvity Inc. E.E.S. is an employee and shareholder of Pathos AI. A.L.M. has received compensation for advising Nurture Genomics and Lykos Therapeutics. R.C.G. has received compensation for advising Allelica, Atria, Fabric, and Genomic Life, and is co-founder of Genome Medical and Nurture Genomics. All other authors declare no competing interests.