,
Snyder, Laurie http://orcid.org/0000-0002-5962-2184
Neely, Megan L.
Hellkamp, Anne S.
O’Brien, Emily
de Andrade, Joao
Conoscenti, Craig S.
Leonard, Thomas
Bender, Shaun
Gulati, Mridu
Culver, Daniel A.
Kaner, Robert J.
Palmer, Scott
Kim, Hyun Joo
Article History
Received: 6 December 2018
Accepted: 22 February 2019
First Online: 30 May 2019
Ethics approval and consent to participate
: The study was approved by the Duke University Institutional Review Board (Pro00046131).The protocol was also approved by the relevant Institutional Review Boards and/or local Independent Ethics Committees prior to patient enrolment at each site listed in the Acknowledgments. All patients provided informed consent.
: LS, MLN, ASH, EOB and SP are faculty members in the Duke Clinical Research Institute (DCRI), which receives funding support from Boehringer Ingelheim Pharmaceuticals, Inc. (BIPI) to coordinate the IPF-PRO Registry. CSC, SB and TL are employees of BIPI. MG reports personal fees from the France Foundation, Pulmonary Fibrosis Foundation, Boehringer Ingelheim, and Genentech. DAC reports personal fees from Boehringer Ingelheim, Genentech, and Biogen. JdA reports personal fees from Boehringer Ingelheim. RJK reports grants and personal fees from Boehringer Ingelheim and Genentech; personal fees from MedImmune and Gilead; and grants from Afferent, Bristol-Myers Squibb, the National Institutes of Health. HJK reports an educational grant from Genentech.
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