McPhail, Steven M.
Auld, Benjamin C.
J. Eagleson, Karen
Justo, Robert
Pagel, Susan
Donovan, Thomasina
Sharma, Pakhi
Senanayake, Sameera
Kularatna, Sanjeewa
Abell, Bridget
Funding for this research was provided by:
Medical Research Futures Fund (#ARGCHDG0035)
Article History
Received: 30 April 2025
Accepted: 19 May 2026
First Online: 2 June 2026
Declarations
:
: Relevant human research ethics committee approvals were obtained from the Queensland Children’s Hospital human research ethics committee (HREC/21/QCHQ/79154, HREC/22/QCHQ/88866, and HREC/2024/QCHQ/106509) for this work. This included a waiver of individual consent for use of de-identifiable administrative data consistent with the ethical standards of the relevant national guidelines on human experimentation (National Health and Medical Research Council’s (NHMRC) National Statement on Ethical Conduct in Human Research (2007). Informed consent was provided by family members prior to being interviewed.
: Not applicable.
: The authors declare no competing interests.