Ghebosu, Raluca
Young, Leonie
Watson, Benedette
Williams, Merran
Dedmon, Ashley
Maxwell, Jo
Thompson, Erik W.
Souza-Fonseca-Guimaraes, Fernando
Wolfram, Joy
Funding for this research was provided by:
National Breast Cancer Foundation (2023/IIRS0063)
Medical Research Future Fund (MRFF2019485)
Article History
Received: 11 April 2025
Accepted: 18 August 2025
First Online: 22 September 2025
Declarations
:
: The study was assessed by The University of Queensland Research Ethics and Integrity department (project 2024/HE002013) according to the National Statement on Ethical Conduct in Human Research (NHMRC) in Australia and relevant institutional policy (PPL 4.20.07). The study was deemed exempt from ethics review due to negligible risks to participants, minimal inconvenience to participants, collection of non‑identifiable data, and the use of anonymous surveys. All workshop participants were given verbal information about the study and a written information sheet, stating that submission of surveys was voluntary and considered an indication of informed consent.
: LY is employed as a Peer Support Coordinator at the Wesley Hospital Choices Cancer Support Centre, Australia, an unpaid President and Chair of the Board of Reach to Recovery International, and co-founder and co-facilitator of Everycloud Consumer and Research Advocacy Training Programs, Australia. LY is a research advisory committee member and a consumer advisory group member of the National Breast Cancer Foundation, Australia, a research advisory group member for Cancer Council Queensland, Australia, an external advisory committee member of the Centre for Health Economics Research & Evaluation, University of Technology, Australia, and a consumer advisory panel member for the Australia and New Zealand Urogenital and Prostate Cancer Group. AD is on the advisory boards of CanCare Houston, United States and the National Minority Quality Forum Cancer Stage Shifting Initiative, United States. AD has leadership roles in the American Cancer Society and Living Beyond Breast Cancer, United States. FSFG is a board member of Cure Cancer Australia. BW is a working group member of Health Translation Queensland Consumer and Community Involvement in Research Alliance, Australia. MW is a consumer member of Bloomhill Cancer Care’s Lived Experience Group and a consumer representative on committees at the Sunshine Coast University Hospital, Australia. LY and MW have received consumer honoraria from Health Translation Queensland and The University of Queensland, Australia. MW has received consumer honoraria from the QIMR Berghofer Medical Research Institute, Australia. AD has received consumer honoraria from the National Breast Cancer Foundation through The University of Queensland, Australia, payment for an expert testimony from Myriad Genetics, United States, and support for meeting attendance from The University of Queensland, Australia.