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Authors
Li-Thiao-Te, Valerie https://orcid.org/0000-0003-0767-1758
Uettwiller, Florence
Quartier, Pierre
Lacaille, Florence
Bader-Meunier, Brigitte
Brousse, Valentine
de Montalembert, Mariane
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More Information
Article History
Received: 24 June 2017
Accepted: 26 December 2017
First Online: 17 January 2018
Ethics approval and consent to participate
: According to the French legislation, no ethics committee agreement was required for such a retrospective survey. Patients data were included in the CEMARA registry for rare diseases which is approved by the French “Commission Nationale Informatique et Liberté” (Landais P, et al. CEMARA an information system for rare diseases. Stud Health Technol Inform 2010;160:481–5).
: Consent to publish was obtained from the parents or legal guardian, when they agreed to be registered in the CEMARA database.
: The authors declare that they have no competing interests.
: Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
