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Authors
Carandang, Kristine https://orcid.org/0000-0002-0159-6374
Mruk, Veronica
Ardoin, Stacy P.
Huynh, Brittany
Clowse, Megan E. B.
Berlan, Elise D.
Edens, Cuoghi
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Funding
Funding for this research was provided by:
PCORnet Autoimmune and Systemic Inflammatory Syndromes Collaborative Research Group (N/A)
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Article History
Received: 4 March 2020
Accepted: 3 August 2020
First Online: 17 August 2020
Ethics approval and consent to participate
: The Institutional Review Board Expedited Committee at Nationwide Children’s Hospital reviewed and approved the first part of this study (3 focus groups recruited in clinic; Study ID IRB18–00589) on 30 July 2018. Participants ages 15–17 years signed an informed assent to participate, and a parent or guardian signed a corresponding informed consent. Participants over the age of 18 years signed an informed consent to participate.The Institutional Review Board Committee at University of Chicago, Biological Science Division, reviewed and approved the second part of this study (survey and focus group conducted at Juvenile Arthritis Conference; Study ID IRB 19–1013 and 19–1014) on 12 July 2019. All participants were 18+ years old and verbally consented to participate.
: Not applicable.
: Dr. Megan Clowse is consultant for UCB about issues surrounding rheumatoid arthritis and pregnancy and is at Duke University, which has an independent medical education grant from GSK about lupus and pregnancy. Dr. Elise Berlan is a Consultant for Bayer and a Nexplanon Clinical Trainer for Merck. None of the other authors have any relevant conflicts of interest to disclose.
