Falasinnu, Titilola
Gonzalez, Alfonso
Robinson, Amora
Hughes, Andrea
Hess, Courtney
Neville, Alexandra
Weisman, Michael
Simons, Laura E.
Funding for this research was provided by:
Chapman Family Foundation
Lupus Research Alliance
Article History
Received: 18 May 2026
Accepted: 12 August 2026
First Online: 1 September 2026
Declarations
Ethical approval: This study was conducted in accordance with the ethical standards of the Declaration of Helsinki. All study procedures were approved by the Stanford University Institutional Review Board and were performed in accordance with Good Clinical Practice (ICH/GCP) guidelines, consistent with the US Food and Drug Administration Code of Federal Regulations, DHHS regulations, and the principles outlined in the Belmont Report. We obtained written informed consent from caregivers and assent from adolescent participants. We ensured participant confidentiality by de-identifying all transcripts and securely storing all data. Participants were informed that they could withdraw from the study at any time without penalty.
Consent for publication: All participants provided written informed consent (caregivers) or assent (adolescents) prior to participation. Consent included permission for anonymized data to be used in publications.
Competing interests: The authors declare no competing interests.