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Measuring what matters to rare disease patients – reflections on the work by the IRDiRC taskforce on patient-centered outcome measures

Crossref DOI link: https://doi.org/10.1186/s13023-017-0718-x

Published Online: 2017-11-02

Published Print: 2017-12

Update policy: https://doi.org/10.1007/springer_crossmark_policy