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Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases

Crossref DOI link: https://doi.org/10.1186/s13023-018-0851-1

Published Online: 2018-06-28

Published Print: 2018-12

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

,

Tingley, Kylie

Coyle, Doug

Graham, Ian D.

Sikora, Lindsey

Chakraborty, Pranesh

Wilson, Kumanan

Mitchell, John J.

Stockler-Ipsiroglu, Sylvia

Potter, Beth K. https://orcid.org/0000-0001-8374-6542
Funding

Funding for this research was provided by:

Canadian Institutes of Health Research (TR3-119195)
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Article History

Received: 11 April 2018

Accepted: 20 June 2018

First Online: 28 June 2018

Ethics approval and consent to participate

: Ethics approval for this study was obtained from the Children’s Hospital of Eastern Ontario Research Ethics Board, the Ottawa Health Science Research Network Research Ethics Board, and the University of Ottawa Health Sciences and Sciences Research Ethics Board. Informed consent was received from all participants in this study.

: Not applicable.

: The authors declare that they have no competing interests

: Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

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