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Patient and observer reported outcome measures to evaluate health-related quality of life in inherited metabolic diseases: a scoping review

Crossref DOI link: https://doi.org/10.1186/s13023-018-0953-9

Published Online: 2018-11-28

Published Print: 2018-12

Update policy: https://doi.org/10.1007/springer_crossmark_policy

Authors

Pascoal, Carlota

Brasil, Sandra

Francisco, Rita

Marques-da-Silva, Dorinda

Rafalko, Agnes

Jaeken, Jaak

Videira, Paula A.

Barros, Luísa

dos Reis Ferreira, Vanessa
Funding

Funding for this research was provided by:

Fundação para a Ciência e a Tecnologia (SFRH/BD/124326/2016)

CDG&Allies-PPAIN (5th Liliana Scientific Initiation Scholarship, 6th Liliana Scientific Initiation Scholarship)
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Article History

Received: 15 August 2018

Accepted: 14 November 2018

First Online: 28 November 2018

Ethics approval and consent to participate

: Not applicable.

: Not applicable.

: V.R.F is the president and founder of the Portuguese Association for Congenital Disorders of Glycosylation. A.R. is the president of Glycomine, Inc. The costs regarding this publication were covered by Glycomine, Inc. All other authors declare no conflict of interests.

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