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Authors
Wan, Hamish W. Y.
Carey, Kate A.
D’Silva, Arlene
Kasparian, Nadine A.
Farrar, Michelle A. https://orcid.org/0000-0002-4472-0902
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Funding
Funding for this research was provided by:
Motor Neurone Disease Research Institute of Australia (152324)
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Article History
Received: 22 January 2019
Accepted: 20 March 2019
First Online: 2 April 2019
Ethics approval and consent to participate
: Ethics approval was granted by the Sydney Children’s Hospitals Network Human Research Ethics Committee (SCHN HREC) on 6/12/2017 (HREC Number: LNR/17/SCHN/441). All participants gave verbal and written consent for participation in the study and the publication of the findings prior to conducting the interviews.
: Not applicable.
: Dr. Farrar has served on the scientific advisory board for Biogen.
: Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
