Wohlfart, Sigrun https://orcid.org/0000-0002-7073-9674
Meiller, Ralph
Hammersen, Johanna
Park, Jung
Menzel-Severing, Johannes
Melichar, Volker O.
Huttner, Kenneth
Johnson, Ramsey
Porte, Florence
Schneider, Holm
Funding for this research was provided by:
Edimer Pharmaceuticals
National Foundation for Ectodermal Dysplasias
Article History
Received: 13 September 2019
Accepted: 24 December 2019
First Online: 10 January 2020
Ethics approval and consent to participate
: The study was approved by an independent institutional ethics committee and registered as Natural History and Outcomes in X-Linked Hypohidrotic Ectodermal Dysplasia (ECP-015; ). Written informed consents of both parents (if available) to the participation of their child in this study were obtained.
: Not applicable.
: The authors declare that they have no competing interests.