Audic, Frédérique http://orcid.org/0000-0001-6055-9007
de la Banda, Marta Gomez Garcia
Bernoux, Delphine
Ramirez-Garcia, Paola
Durigneux, Julien
Barnerias, Christine
Isapof, Arnaud
Cuisset, Jean-Marie
Cances, Claude
Richelme, Christian
Vuillerot, Carole
Laugel, Vincent
Ropars, Juliette
Altuzarra, Cécilia
Espil-Taris, Caroline
Walther-Louvier, Ulrike
Sabouraud, Pascal
Chouchane, Mondher
Vanhulle, Catherine
Trommsdorff, Valérie
Pervillé, Anne
Testard, Hervé
Lagrue, Emmanuelle
Sarret, Catherine
Avice, Anne-Laude
Beze-Beyrie, Pierre
Pauly, Vanessa
Quijano-Roy, Susana
Chabrol, Brigitte
Desguerre, Isabelle
Article History
Received: 4 October 2019
Accepted: 18 May 2020
First Online: 12 June 2020
Ethics approval and consent to participate
: No nominative, sensitive or personal data on patients were collected. This study was not a clinical trial and falls within the scope of the MR-004 Reference Methodology of the French National Commission for Data Protection and Liberties (CNIL, <i>Commission Nationale Informatique et Libertés</i>).The study was approved by the ethics committee of the French Society for Pediatrics (<i>Société Française de Pédiatrie</i>) under number CER_SFP 2018_095, and registered by the institutional review board under n° 2018_2.
: Not applicable.
: The authors declare that they have no competing interests.This study was supported by the French network of neuromuscular disorders (FILNEMUS).