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Article History

Received: 2 January 2020

Accepted: 4 June 2020

First Online: 30 June 2020

Ethics approval and consent to participate

: This registry is run in accordance with the recommendations from the Declaration of Helsinki and has received ethical, regulatory and institutional approvals at national, regional and site level for each participating country, as required. All participants or their legal representative provide informed consent before their enrolment in the registry.

: Not applicable.

: RP received research grant, honorarium as a speaker and travel grant from Kyowa Kirin International.ON has received research support, speakers’ honoraria, consulting fees from Kyowa Kirin.OM declares consultancy, travel support and honoraria from Kyowa Kirin.SSB-N has received fees from Kyowa Kirin for speeches, consultancy, and participation in Advisory Boards. In addition, Kyowa Kirin has provided a pending grant for an upcoming study. Novo Nordisk have paid a fee for an invited speech.GA declares having received an honorarium for lectures and other educational activities, including travel and registration support for some scientific meetings in the field of Paediatric Nephrology. GA participates as a local investigator at The International X-Linked Hypophosphataemia (XLH) Registry (NCT03193476).ZM has received honoraria from Kyowa Kirin International for participating in meetings relating to the XLH registry, and payment for lectures on XLH from Kyowa Kirin International.MS was an employee of the study sponsor between Jan 2017 and July 2019.EL performed consultancy for Kyowa Kirin.RJ was engaged as a consultant for the design and implementation of the XLH Registry. RJ has not received remuneration for the authoring of this manuscript.The other authors declare that they have no competing interests.