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Authors
Gorini, Francesca https://orcid.org/0000-0002-4619-6227
Coi, Alessio
Mezzasalma, Lorena
Baldacci, Silvia
Pierini, Anna
Santoro, Michele
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Article History
Received: 24 April 2021
Accepted: 7 June 2021
First Online: 14 June 2021
Declarations
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: Tuscany Region requests the delivery of an Informative Note to each patient (document available at: ) prior to their inclusion in the Rare Diseases Registry of Tuscany, according to Article 13 of Privacy Code (Legislative Decree 196/2003 Privacy Code). The Informative Note specifies that data of patients can be used for research and surveillance aims. Co-authors performing the study cannot in any way get the identity of patients and only aggregated results are published.
: Not applicable.
: The authors declare that they have no competing interests.
